When Grace Clocks In: Grief, Disability, and the Workplace

There are phrases you forget. Others hang around.

This one came from a leader two gigs ago. Years later, it still hasn’t left:

“An above-average series of unfortunate events.”

Interesting way to put it. Especially when you know what the “events” were.

My daughter had died.

Jubilee spent 393 days in the NICU. For more than a year, our family learned to live somewhere between home, work, church and a hospital room. Then she was gone, and we had to figure out how to live in a world that kept moving without her.

Money was tight. Really tight. I kept working. Kept functioning. I donated plasma on my lunch breaks for extra money until one day I nearly passed out afterward. Something inside me was running out of road, and I didn’t understand why.

I know more now.

Earlier this year, my spectrum results came in. Suddenly, parts of my life that had never quite made sense started talking to each other. The masking. The exhaustion. The mental real estate consumed by unresolved conflict. The invisible cost of navigating environments that seemed to cost other people almost nothing.

Then I looked back at that season: bereavement, financial pressure, neurodivergent burnout. All stacked on top of each other before I even had the language to understand why my own wiring made some of that weight so costly to carry.

So, sure. “Unfortunate events.” Might as well call a hurricane an above-average amount of wind and rain.

I don’t believe that leader was trying to be cruel. I can’t know everything behind the words. But intent isn’t really why the phrase stayed with me. It stayed because language can be technically defensible and still be painfully inadequate for the human being standing underneath it.

That’s where I’ve landed on something I wish more leaders understood:

Context isn’t the enemy of accountability.

I haven’t always communicated as clearly as I could have, and I certainly haven’t navigated every professional situation perfectly. Being neurodivergent doesn’t absolve me of responsibility. Neither does grief. But context isn’t an escape hatch from accountability. Understanding someone more fully makes accountability more accurate.

If somebody who was once engaged suddenly isn’t, get curious. If performance changes after catastrophic loss, get curious. If someone trusts you enough to disclose a disability, get curious.

Not “What’s wrong with this person?” but “What’s happening to this person?”

I’ve started calling that holy curiosity.

There was real kindness during Jubilee’s 393 days. Coworkers gave their time. People helped me get to the NICU. My employer gave our family flexibility during an impossible season. Distance has helped me appreciate those things more, not less.

I’m also a words-of-affirmation person. Looking back, I can see times when I was waiting for care to arrive in the language I understood best while missing some of the ways people were already speaking it. That’s mine to own.

But kindness and understanding aren’t necessarily the same thing. The fairest way I know to say it is this: I received more kindness than I knew how to appreciate at the time, but less intentional understanding than I needed.

We also understand neurodivergence differently than we did when I was growing up. People like me can make it through school, relationships and entire careers without understanding why seemingly ordinary environments exact such an extraordinary internal cost.

We know more now. That should make us more curious now.

We talk about grace. Truth. Mercy. Restoration. Bearing burdens. Eventually those words have to clock in. They have to survive somebody’s grief affecting performance, somebody’s disability complicating communication, somebody making a mistake, somebody becoming inconvenient.

Jesus had a way of refusing to reduce complicated people to the most immediately visible thing about them. He noticed. He asked. He moved toward suffering.

Maybe that’s where better leadership begins too.

There is another place where this conversation matters just as deeply: the church. Faith communities can be remarkably good at showing up when tragedy arrives. But what happens when the meals stop, the crisis passes, and grief or special needs simply become part of a family’s everyday life? That’s where I want to go next—in Part Two, When the Church Moves On.

Rousing Resilience (Part 1)

We all have heroes.

Whether they’re family members or historical/cultural icons…we all have figures we look up to1.

Of course, not all protagonists and champions are alike; however, when we consider their innate qualities, it’d be hard to find any who lacked some form of resilience.

What is resilience, you ask?

Well, for starters, it’s the theme of this year’s Acquire the Fire event (hence, the topic’s prevalence).

Yet, as far as definition goes, resilience bears rich substance2. In fact, when we dig into Scripture3, we find resilience to be a number of things. Among them…

  • A refusal to quit…
  • A pledge to stand firm…
  • Courage maintained…
  • Boldness with honor…
  • …and a fearlessness rooted in two instinct-defying words…

“I can’t.”4

Now, I know it sounds weird, but when we confess this itty-bitty sentence to God, it not only offers Him great delight, but it also allows us to see just how much “He can”.

Why? Because owning our weakness is the first step to being set free from it!

In other words, when we admit and release our crap to God, He doesn’t just listen – He intervenes, He intercedes…all the while, showing us the pathway to real, radical heart change.

Pretty cool, eh?

But resilience doesn’t stop there.

‘Cause when we drill a little deeper, we find resilience also enables us to know how…

  • …our helplessness can be expressed as acceptable worship and reference (Hebrews 12:27-29).
  • …our weakness can be flipped into God’s strength filling in the holes of our efforts (2 Corinthians 12:9).
  • …and our problems can (and will) be fixed simply by fixing our eyes on the One who ultimately is in control (Psalm 16:8, Hebrews 12:2).

Honestly, when you think about, this can be especially encouraging, considering we will encounter adverse circumstances at some point, whether it’s an abusive relationship, financial and/or occupational turbulence, past woundedness, and/or the stubble of our sin. But even when life seems stuck on cruise-control and hope is nothing but a fleeting fairytale, we can still know “no fear”5.

‘Cause truth is: all it takes is one simple shout of surrender to bounce back…

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…one victorious “Yes” to God in the face of apparent defeat…

…and one resolute declaration of “God is enough”…

…even if 6 we’re walking through hell, unsure of what’s to come (see Daniel 3).

And I’m sorry, Captain Nesmith, but the phrase, “Never give up. Never surrender” doesn’t fully capture the essence of true resilience. Because the only way to “never give up” is to surrender…abandoning any independent pursuit that suggests we’re strong enough to adjust our course.

At the end of the day, the only means of courage is to admit we must be filled with it to live it.

And that, my friends, is what real resilience is all about it.

Next time, we’ll examine some practical points on how to live resilience out in a transformational way.

In the meantime, I leave with some passages from Isaiah & one from Habakkuk:

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“In repentance and rest is your salvation, in quietness and trust is your strength” ~ Isaiah 30:15

“He gives strength to the weary and increases the power of the weak.” ~ Isaiah 40:29

“…but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.” ~ Isaiah 40:31

“You wearied yourself by such going about, but you would not say, ‘It is hopeless.’ You found renewal of your strength, and so you did not faint.” ~ Isaiah 57:10

“The Sovereign Lord is my strength; he makes my feet like the feet of a deer, he enables me to tread on the heights.” ~ Habakkuk 3:19

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Footnotes

1) Which is how we’re designed

2) And is arguably one of the most overlooked faith terms in Scripture.

3) Especially Joshua, 2 Timothy, Philippians and Romans

4) Point inspired by Christ Is Life Ministries

5) The fact this sentence contains a “triple-negative” doesn’t devoid it of truth.

6) The story of Shadrach, Meshach & Abednego really centers on these two words (Thanks to Kemtal Glasgow for the inspiration)

 
Cover photo from thefeministwire.com